A Second Opinion

Yesterday, while most of LA was trying to escape a fire that had broken out along the 405 near the Getty Museum my wife, Jodie and I raced towards it. I had an appointment with Dr. Stuart Holden, a urological oncologist at UCLA that had been recommended to me by a family friend.

I can best describe the UCLA Medicine complex as what would happen if a hospital building devoured several other hospital buildings and then plopped itself down in the middle of a bustling downtown. The size was bewildering! While checking in at Urology Jodie noticed that all of the doctors’ cards were arranged on a turnstile like the ones grocery stores use to display gift cards. We counted over 30 before finding and pocketing Dr. Holdens. 

It’s amazing how different doctors can have such dramatically different opinions on treatment.

Last week I talked to Dr. Carrie Costantini, an oncologist at Scripps. She gave me two options, either remove my prostate, or bombard it with radiation. Dr. Holden told me that performing surgery was premature without first determining if the cancer had spread. He said that the treatment varies considerably depending on whether or not the cancer is contained within the prostate or has spread elsewhere. Furthermore, performing surgery or treatment before getting a full picture might make me ineligible for clinical trials. 

Dr. Holden told me that out of the 60 urologists in his office that none of them would preemptively operate without running additional tests. 

These tests include a bleeding edge scan called a Ga-PSMA PET CT Scan. What a mouthful, right? In my last post I wrote about the Prostate-specific antigen ( PSA ) test for helping to detect prostate cancer. To clarify, PSA is a protein produced by the prostate. When the prostate is inflamed it produces more of it. Thus, it is commonly used as an indicator of cancer. As it turns out once prostate cancer has metastasized the PSA protein is not as accurate, particularly with aggressive cancer such as yours truly has. The Prostate-specific membrane antigen ( PSMA ) is another protein that’s prevalent in metastasized prostate cancer cells. This new PSMA scan can pinpoint exactly where prostate cancer has metastasized so that targeted drugs can be delivered. Or, at least that’s what Dr. Holden is trying to sell me on. The truth is? I believe him. The downside is that the test costs just shy of $3000, is not ( yet ) FDA approved, and I’ll have to drive UCLA to get it done. Hopefully the fires will have been extinguished by then.

Dr. Holden also wanted me to get a genetic screening done as he suspects my cancer is likely well, genetic. Whereas Scripps told me there was a 4 month lead time, Dr. Holden directed me to a company called Color Genomics. For $249 and some of your spit Color Genomics will determine if you have any known cancer genes including BRCA-1 and BRCA-2. BRCA stands for “BReast CAncer susceptibility gene”. Dr. Holden told me that my cancer treatment could vary based upon the findings produced by the genetic screening. Having the genetic screening performed will also help determine if my daughters might be at risk of cancer someday as well.

Lastly, Dr. Holden was perplexed why my initial CT Scan did not include my entire body. He told me that given my high PSA ( 78+ ) and Gleason ( 8-10 ) scores that it would be highly unlikely that the cancer would not have already metastasized. He told me that this warranted a CT Scan of my entire body – not just my groin area. He said that the CT Scan that I received was an impartial picture of the problem. Dr. Holden was just as perplexed why my prostate biopsy wasn’t guided by Magnetic Resonance Imaging ( MRI ). A urologist has the option of using an MRI machine to target specific regions of the prostate during a biopsy. My urologist removed 12 samples, or cores randomly from my prostate. In his defense however, he struck “gold” everywhere he dug. 

Then Dr. Holden gave me yet another Digital Rectal Exam.

I’m beginning to realize that Prostate Exams are to a urologist as handshakes are to everyone else. 

It’s just their way of saying, “Hi. Nice to meet you.” Fortunately, Dr. Holden admitted to having small hands before niceties were exchanged.

So what’s next? This Friday I have another second ( third? ) opinion with a Dr. Tyler Stewart a urological oncologist at UCSD’s Moores Cancer Society. After that I’ll have more than enough information to make an educated decision on what to do next. 

Not for the last time I am incredibly grateful for the outpouring of support from everyone as I work through all of this. I can’t thank you enough. I’m beginning to realize that cancer is a full-time job but at the same time it’s important not to lose sight of what is important. I love you all. Take care. Eat Healthy. Stay Healthy. 

Previous : Prostate Cancer

Next : Building My Team

hiclipart.com-id_xvjlw
#prostatecancer #cancer #prostatitis #psa #prostate #urology #oncology #drawnandcoded #iwillbeatthis

11 thoughts on “A Second Opinion

  1. Scott: So sorry to learn about this. At my age, I have these concerns as well – so I wanted to let you know that I really appreciated hearing about “Color”, and I will be getting a test done as well. For me, my biggest fear (other than death) would be the retention of sexual functionality. I would especially like to hear about anything you learn with regards to post-treatment “performance”. Todd.

    Like

    1. I’ll be sure to post about the side effects of surgery and whatnot as I work my way through treatments. My current understanding is that surgery can cause problems with erections as well as impotence depending on how much tissue ( and nerves ) needs to be removed. You obviously want a very very good surgeon.

      Like

  2. Reading UCLA’s opinion makes sense! I wonder what UCSD hill will say! So far very different ideas! I am sure you will make the best choice for you! ❤️Tia

    Liked by 1 person

  3. Glad you are doing your due diligence and getting armed with as much information as possible before you start treatment. Hoping the PSMA scan is done soon and confirms that the cancer is still localized!

    Liked by 1 person

  4. Your persistence is admirable. Hope you will not need to many more “handshakes”. Thank you so much for sharing your intimate story. Scott This is just a bump in the road. I believe this. My continued prayers and positive vibes your way. ❤️

    Liked by 1 person

  5. Wow! That’s a lot to process, and I wouldn’t have imagined the recommendations would be so different. Thank goodness you have a head worthy of such a decision!

    Liked by 1 person

  6. Hey buddy,

    Just read this. Oh my god, so sorry to had to go through this. So brave of you to had to go through and yet find it comical to blog! That’s the Scott I know and adore! 🤗

    I miss our time at QC and wish I stayed in touch through after years. I’ll give you a call soon. Love ya.

    Prashant

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s